Tuesday 18 October 2011

The Immortal Life of Henrietta Lacks - Rebecca Skloot

This was one of those books that is utterly captivating but rather hard to describe, as it somehow manages to form a coherent whole out of strands of biography, memoir (as the author's research becomes part of the narrative), medical history, and ethical debate. The focal point for all of these aspects is the life and legacy of a young woman called Henrietta Lacks, who died of cancer in 1951, unknowingly leaving behind a sample of cells from the tumour on her cervix, which became 'HeLa' - "the world's first immortal human cells". I finally tracked it down after being given a strong recommendation for it months ago, and was very glad it did because it really got me thinking and kept popping up in conversation with everyone I spoke to for weeks afterwards. I was surprised to discover that informed consent is still not always required for cell research (e.g. in the UK "Consent is not required to use tissue obtained from living patients if the tissue is anonymous to the researcher and the project has research ethics approval"), and was in total sympathy when reading about the difficulties the Lacks family had in accepting what had happened - but intriguingly, when I mentioned the book to a friend currently doing scientific research, she appeared utterly bemused by the idea that anyone might object...

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